Thursday, March 22, 2012


Here's to taking back the word progress. Secondary Progressive is the label official types
give my form of MS, but all forms are 'progressive' which means the condition gets worse over time.
Sad but true. But PROGRESS sounds like a good thng. This makes it seem like the condition wins.
I know we should see the truth but do we have to
give up at the get-go?
Maybe we need a progressively stronger attitude to dealing.
Spirit Progressive.

Tuesday, March 20, 2012


To honour the official start of spring, a joyful hooray!
Love the chirp of the birds. Full of hope.
Knowing it IS Canada, where snow is not unheard of in April,
here's to celebrating the unpredictable.
The story of MS.
A reminder to try to rise to the moment.

Tuesday, January 3, 2012

Wednesday, November 9, 2011

Still broken

I was diagnosed with MS about 10 years ago. I was sent to a neurologist at a well-known clinic of experts. (A drug rep invited to learn from my diagnosis appointment, drug branded back pack sent) I was advised to go on the typical drugs. I followed the advice for two years. I got worse. I was told that if I didn't take a supposedly stronger drug, there was nothing they could do. I wanted to try a more natural approach. It seemed to work for a time. When I made this choice, I was on my own. No neuro, no clinic approval. Rogue. I tried a lot of things. Some things helped for awhile. Some choices led to darker outcomes.Recently, I decided to try Rehab. A combination of Physio, OT, etc.We will see if the skills they taught me over the 9 weeks or so do the trick. It is up to me to stay motivated.The lead doctor at the rehab hospital recommended a follow up with a neurologist. I thought another neurologist might have some insights to share. He set up a referral to a new neuro at the same clinic of experts.i recieved notice of a follow up with the same neurologist I saw 10 years ago. When I called to sort out the mix up, I was informed that that the request had been received but the clinic has a policy of not allowing patients to switch among the team.