Wednesday, November 24, 2010

The Backstory: A year in review

What a year it has been. Ironically, I went for an ultrasound to see if my veins are narrowed or blocked, a day after the one year anniversary of this story. I feel conflicted in so many ways.I am awash with memories of my own medical tourism escapades a few years ago. It would be called a "complication" by some. I almost died. Also ironically, it involved a device for my veins and blood thinners. I am haunted by that experience.

There are still more deaths on the drug side of the game.

Thursday, November 18, 2010

good find: Dr. Hubbard Interview

Here is the considered interview I was seeking! From a neuro, no less.

Tuesday, November 16, 2010

Follow up

There are very few easy answers in life, and the MS scene is seeing that story play out. On one hand, we see some patients recovering in remarkable ways. On the other hand, cautionary tales abound and some patients are seeing issues at home with follow up.

It seems that in very few cases we have the chance to see a well-thought out, considered case. A meatier sound-bite. It seems the patients that have done well aren't shy to have their 15 minutes. The patients who have had a less media digestible experience are less forthcoming. The neuros -- Can we trust them? The crystal ball is murky at best.

Wednesday, November 10, 2010

good find: CCSVI VIDEOS

There's no shortage of coverage, both big media and Average Joe - pro and against....links below. You decide.

CTV
Every day Folk
More Good News From Us
CTV ATLANTIC

Thursday, November 4, 2010

A River of Cold

Lately, I have been having this symptom that I call the river of cold. It feels like a trickle of ice cold water iflowing down my right arm, starting at my neck and going into my hand. I can't see a pattern in the whens of the rivers. It seems isolated to the right side. As scary as it can be, it is oddly poetic.