tag:blogger.com,1999:blog-25206642260231916692024-03-13T14:53:47.253-07:00the good fightThe landscape of MS is full of tales of ordinary folk rising to fight the good fight. This blog aims to capture that spirit.cb nixonhttp://www.blogger.com/profile/15823598771023508134noreply@blogger.comBlogger56125tag:blogger.com,1999:blog-2520664226023191669.post-33485986298493757682012-05-20T15:53:00.001-07:002012-05-20T15:53:30.786-07:00Live different summer is bliss for most but can be challenging for MS
folk...the humidity makes vision foggy and weakness strikes too.cb nixonhttp://www.blogger.com/profile/15823598771023508134noreply@blogger.com0tag:blogger.com,1999:blog-2520664226023191669.post-52839287084375566412012-05-14T14:13:00.001-07:002012-05-14T14:47:57.606-07:00Expect less in a consumerist culture chasing bigger, more and the
next ...here's to expecting less and appreciating more TODAY.cb nixonhttp://www.blogger.com/profile/15823598771023508134noreply@blogger.com0tag:blogger.com,1999:blog-2520664226023191669.post-34859515267648152312012-03-22T07:15:00.005-07:002012-03-23T06:53:18.861-07:00progressHere's to taking back the word progress. Secondary Progressive is the label official types<br />give my form of MS, but all forms are 'progressive' which means the condition gets worse over time. <br />Sad but true. But PROGRESS sounds like a good thng. This makes it seem like the condition wins.<br />I know we should see the truth but do we have to<br /> give up at the get-go?<br />Maybe we need a progressively stronger attitude to dealing.<br />Spirit Progressive.cb nixonhttp://www.blogger.com/profile/15823598771023508134noreply@blogger.com0tag:blogger.com,1999:blog-2520664226023191669.post-60091990898803388712012-03-20T07:36:00.006-07:002012-03-21T07:22:36.601-07:00springTo honour the official start of spring, a joyful hooray! <br />Love the chirp of the birds. Full of hope. <br />Knowing it IS Canada, where snow is not unheard of in April,<br />here's to celebrating the unpredictable. <br />The story of MS. <br />A reminder to try to rise to the moment.cb nixonhttp://www.blogger.com/profile/15823598771023508134noreply@blogger.com0tag:blogger.com,1999:blog-2520664226023191669.post-58327974524983542612012-01-03T09:26:00.000-08:002012-01-03T09:27:44.029-08:00<iframe width="420" height="315" src="http://www.youtube.com/embed/pGdO5DVh78Q" frameborder="0" allowfullscreen></iframe>cb nixonhttp://www.blogger.com/profile/15823598771023508134noreply@blogger.com0tag:blogger.com,1999:blog-2520664226023191669.post-45853053426843676892011-12-05T09:00:00.000-08:002011-12-05T09:06:41.755-08:00god find: brain fuel<a href="http://www.youtube.com/watch?v=KLjgBLwH3Wc&feature=youtube_gdata_player">hope this works....</a>cb nixonhttp://www.blogger.com/profile/15823598771023508134noreply@blogger.com0tag:blogger.com,1999:blog-2520664226023191669.post-17606694860167113022011-11-09T09:59:00.000-08:002011-11-09T11:08:45.904-08:00Still brokenI was diagnosed with MS about 10 years ago. I was sent to a neurologist at a well-known clinic of experts. (A drug rep invited to learn from my diagnosis appointment, drug branded back pack sent) I was advised to go on the typical drugs. I followed the advice for two years. I got worse. I was told that if I didn't take a supposedly stronger drug, there was nothing they could do. I wanted to try a more natural approach. It seemed to work for a time. When I made this choice, I was on my own. No neuro, no clinic approval. Rogue. I tried a lot of things. Some things helped for awhile. Some choices led to darker outcomes.Recently, I decided to try Rehab. A combination of Physio, OT, etc.We will see if the skills they taught me over the 9 weeks or so do the trick. It is up to me to stay motivated.The lead doctor at the rehab hospital recommended a follow up with a neurologist. I thought another neurologist might have some insights to share. He set up a referral to a new neuro at the same clinic of experts.i recieved notice of a follow up with the same neurologist I saw 10 years ago. When I called to sort out the mix up, I was informed that that the request had been received but the clinic has a policy of not allowing patients to switch among the team.cb nixonhttp://www.blogger.com/profile/15823598771023508134noreply@blogger.com0tag:blogger.com,1999:blog-2520664226023191669.post-45063197567279459402011-10-14T08:34:00.000-07:002011-10-14T08:55:23.000-07:00good find: Mindfulness (long video)Themes of time and the art of life <a href="http://www.youtube.com/watch?v=_If4a-gHg_I&feature=youtu.be">gather here.</a>cb nixonhttp://www.blogger.com/profile/15823598771023508134noreply@blogger.com0tag:blogger.com,1999:blog-2520664226023191669.post-71174461493191944992011-09-29T08:16:00.000-07:002011-09-29T08:19:35.289-07:00good find: Clear your mind<iframe width="560" height="315" src="http://www.youtube.com/embed/c53vo33EzSc" frameborder="0" allowfullscreen></iframe>cb nixonhttp://www.blogger.com/profile/15823598771023508134noreply@blogger.com0tag:blogger.com,1999:blog-2520664226023191669.post-17165825414644269162011-09-29T06:44:00.000-07:002011-09-29T07:23:49.972-07:00UnspokenI woke up this morning with eyes wide open to life's uneven narratives. The story that we are told to want, and the way things actually are. I think it is partially election influence. At the end of the day, we need to follow our own path. Reality does not often match common assumptions.cb nixonhttp://www.blogger.com/profile/15823598771023508134noreply@blogger.com0tag:blogger.com,1999:blog-2520664226023191669.post-64799033115505642812011-09-21T08:54:00.000-07:002011-09-21T08:58:01.692-07:00good find: Time<object width="526" height="374"><br /><param name="movie" value="http://video.ted.com/assets/player/swf/EmbedPlayer.swf"></param><br /><param name="allowFullScreen" value="true" /><br /><param name="allowScriptAccess" value="always"/><br /><param name="wmode" value="transparent"></param><br /><param name="bgColor" value="#ffffff"></param><br /><param name="flashvars" value="vu=http://video.ted.com/talk/stream/2009U/Blank/PhilZimbardo_2009U-320k.mp4&su=http://images.ted.com/images/ted/tedindex/embed-posters/PhilZimbardo-2009U.embed_thumbnail.jpg&vw=512&vh=288&ap=0&ti=582&lang=&introDuration=15330&adDuration=4000&postAdDuration=830&adKeys=talk=philip_zimbardo_prescribes_a_healthy_take_on_time;year=2009;theme=how_the_mind_works;theme=unconventional_explanations;theme=what_makes_us_happy;event=TED2009;tag=Business;tag=Science;tag=brain;tag=happiness;tag=mind;tag=psychology;&preAdTag=tconf.ted/embed;tile=1;sz=512x288;" /><br /><embed src="http://video.ted.com/assets/player/swf/EmbedPlayer.swf" pluginspace="http://www.macromedia.com/go/getflashplayer" type="application/x-shockwave-flash" wmode="transparent" bgColor="#ffffff" width="526" height="374" allowFullScreen="true" allowScriptAccess="always" flashvars="vu=http://video.ted.com/talk/stream/2009U/Blank/PhilZimbardo_2009U-320k.mp4&su=http://images.ted.com/images/ted/tedindex/embed-posters/PhilZimbardo-2009U.embed_thumbnail.jpg&vw=512&vh=288&ap=0&ti=582&lang=&introDuration=15330&adDuration=4000&postAdDuration=830&adKeys=talk=philip_zimbardo_prescribes_a_healthy_take_on_time;year=2009;theme=how_the_mind_works;theme=unconventional_explanations;theme=what_makes_us_happy;event=TED2009;tag=Business;tag=Science;tag=brain;tag=happiness;tag=mind;tag=psychology;&preAdTag=tconf.ted/embed;tile=1;sz=512x288;"></embed><br /></object>cb nixonhttp://www.blogger.com/profile/15823598771023508134noreply@blogger.com0tag:blogger.com,1999:blog-2520664226023191669.post-15408018607547771052011-05-30T05:57:00.000-07:002011-05-30T06:07:01.072-07:00good find: BreatheFrom one of my favourit shows, a calm <a href="http://www.cbc.ca/spark/2009/10/learn-to-breathe-with-nora-young/">breath.</a>cb nixonhttp://www.blogger.com/profile/15823598771023508134noreply@blogger.com0tag:blogger.com,1999:blog-2520664226023191669.post-49173357506344748342011-05-30T05:47:00.000-07:002011-05-30T05:55:14.319-07:00good find: Adapt<a href="http://www.npr.org/2011/05/23/136503420/adapt-failure-as-an-option-on-the-way-to-success">Lessons </a>from start-ups that apply to life in general too.cb nixonhttp://www.blogger.com/profile/15823598771023508134noreply@blogger.com0tag:blogger.com,1999:blog-2520664226023191669.post-45328156538382541762011-05-10T12:28:00.000-07:002011-05-16T07:02:34.594-07:00good find: on being<a href="http://being.publicradio.org/">A guide to being </a>human. The guest speaker, Sylvia Boorstein was especially <a href="http://being.publicradio.org/programs/2011/what-we-nurture/video_in-the-room.shtml">good.</a>cb nixonhttp://www.blogger.com/profile/15823598771023508134noreply@blogger.com0tag:blogger.com,1999:blog-2520664226023191669.post-9389986548579105622011-05-10T09:00:00.000-07:002011-05-10T09:12:34.387-07:00the impossible blueshe dives into the impossible blue<br />a bubble escapes her gasp<br />inspiration fuelcb nixonhttp://www.blogger.com/profile/15823598771023508134noreply@blogger.com0tag:blogger.com,1999:blog-2520664226023191669.post-70478277547862641212011-05-10T07:42:00.000-07:002011-05-10T08:11:52.455-07:00A tree<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhhDIypdpiVczWNDJOhcw6c5ymzj1PUdB9rS0px2OHV5O11qgt_yc9rel52xJZkKeHLne2lAVSTpuj0aOOKt0CJdRQvhUrsGGpNqJHQT9TDLwXB6ef1uFhI4XiPTCyF72cVWB5Xuh7CBYcA/s1600/tree.jpg"><img style="cursor:pointer; cursor:hand;width: 320px; height: 224px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhhDIypdpiVczWNDJOhcw6c5ymzj1PUdB9rS0px2OHV5O11qgt_yc9rel52xJZkKeHLne2lAVSTpuj0aOOKt0CJdRQvhUrsGGpNqJHQT9TDLwXB6ef1uFhI4XiPTCyF72cVWB5Xuh7CBYcA/s320/tree.jpg" border="0" alt=""id="BLOGGER_PHOTO_ID_5605098182674630418" /></a><br /><br />This image was a gift from a loyal follower. It represents how strong life is.<br />These trees are from the White Mountains, USA. They are more than 4000 years old.<br />Wishing you the strength of these gems.cb nixonhttp://www.blogger.com/profile/15823598771023508134noreply@blogger.com0tag:blogger.com,1999:blog-2520664226023191669.post-31222171605842707612011-03-21T08:09:00.000-07:002011-03-21T08:43:25.461-07:00good find: research<a href="http://www.youtube.com/watch?v=sIXwnpLa1mk&feature=player_embedded#at=62">Solid voice</a>s on the subject of <a href="http://www.youtube.com/watch?v=nNXBz95CBtc&feature=player_embedded#at=177">CCSVI.</a>cb nixonhttp://www.blogger.com/profile/15823598771023508134noreply@blogger.com0tag:blogger.com,1999:blog-2520664226023191669.post-20082711904273230472011-03-11T09:27:00.000-08:002011-03-11T09:45:58.283-08:00good find: fighting yourself<a href="http://www.radiolab.org">Motivation</a> notes for us all.cb nixonhttp://www.blogger.com/profile/15823598771023508134noreply@blogger.com0tag:blogger.com,1999:blog-2520664226023191669.post-45813517064449001672011-01-31T09:46:00.000-08:002011-01-31T09:47:51.533-08:00good find: healing<object width="446" height="326"><param name="movie" value="http://video.ted.com/assets/player/swf/EmbedPlayer.swf"></param><param name="allowFullScreen" value="true" /><param name="allowScriptAccess" value="always"/><param name="wmode" value="transparent"></param><param name="bgColor" value="#ffffff"></param> <param name="flashvars" value="vu=http://video.ted.com/talks/dynamic/DeanOrnish_2004-medium.flv&su=http://images.ted.com/images/ted/tedindex/embed-posters/DeanOrnish-2004.embed_thumbnail.jpg&vw=432&vh=240&ap=0&ti=377&introDuration=15330&adDuration=4000&postAdDuration=830&adKeys=talk=dean_ornish_on_healing;year=2004;theme=might_you_live_a_great_deal_longer;theme=unconventional_explanations;theme=bold_predictions_stern_warnings;theme=medicine_without_borders;event=TED2004;&preAdTag=tconf.ted/embed;tile=1;sz=512x288;" /><embed src="http://video.ted.com/assets/player/swf/EmbedPlayer.swf" pluginspace="http://www.macromedia.com/go/getflashplayer" type="application/x-shockwave-flash" wmode="transparent" bgColor="#ffffff" width="446" height="326" allowFullScreen="true" allowScriptAccess="always" flashvars="vu=http://video.ted.com/talks/dynamic/DeanOrnish_2004-medium.flv&su=http://images.ted.com/images/ted/tedindex/embed-posters/DeanOrnish-2004.embed_thumbnail.jpg&vw=432&vh=240&ap=0&ti=377&introDuration=15330&adDuration=4000&postAdDuration=830&adKeys=talk=dean_ornish_on_healing;year=2004;theme=might_you_live_a_great_deal_longer;theme=unconventional_explanations;theme=bold_predictions_stern_warnings;theme=medicine_without_borders;event=TED2004;"></embed></object>cb nixonhttp://www.blogger.com/profile/15823598771023508134noreply@blogger.com0tag:blogger.com,1999:blog-2520664226023191669.post-58534357934460144392011-01-18T15:39:00.000-08:002011-01-18T15:42:52.185-08:00good find: Quote<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgyNWH78o794xvmfmKcYWTUmGEqlwsxnPScxK2bWX43ZeNiPmnRZT8_nUEsGx2LTqxzfusDHPxP_6Tc1TkS3SCqy5TNFDksnXXiODJaSh7uXI9MamzQmZB9Chx4u9tI2DOZ2n_49NW0yNXZ/s1600/quote.jpg"><img style="cursor:pointer; cursor:hand;width: 282px; height: 320px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgyNWH78o794xvmfmKcYWTUmGEqlwsxnPScxK2bWX43ZeNiPmnRZT8_nUEsGx2LTqxzfusDHPxP_6Tc1TkS3SCqy5TNFDksnXXiODJaSh7uXI9MamzQmZB9Chx4u9tI2DOZ2n_49NW0yNXZ/s320/quote.jpg" border="0" alt=""id="BLOGGER_PHOTO_ID_5563675479340346818" /></a>cb nixonhttp://www.blogger.com/profile/15823598771023508134noreply@blogger.com1tag:blogger.com,1999:blog-2520664226023191669.post-55849494227618855982011-01-11T01:11:00.000-08:002011-01-11T10:03:04.323-08:00good find: Purple PantsThis<a href="http://www.youtube.com/watch?v=9n3PV3lBrMM"></a> was sent to me by Ruby. Here's to celebrating difference. <br />Ironically, I chatted with a woman wearing fushia-purpley pants the day before I saw this video. Life is strange and beautiful. <a href="http://www.youtube.com/watch?v=9n3PV3lBrMM">Dive in.</a>cb nixonhttp://www.blogger.com/profile/15823598771023508134noreply@blogger.com0tag:blogger.com,1999:blog-2520664226023191669.post-86805803141226118152011-01-04T11:15:00.000-08:002011-01-04T11:21:50.637-08:00good find: Spirit<a href="http://www.youtube.com/watch?v=p_b4X-HQ8-I&feature=player_embedded">The spirit of this blog is captured here.</a>cb nixonhttp://www.blogger.com/profile/15823598771023508134noreply@blogger.com2tag:blogger.com,1999:blog-2520664226023191669.post-64550403564435103522010-12-06T06:35:00.000-08:002010-12-06T11:10:09.985-08:00good find: Unbroken<a href="http://www.youtube.com/watch?v=X4Qm9cGRub0">Perhaps the secret </a>of all secrets is that we are all<a href="http://www.npr.org/2010/12/01/131724901/the-unbroken-spirit-of-an-ordinary-hero"> broken, </a>and trying to take our broken wings and learn to fly as the Beatles sang.cb nixonhttp://www.blogger.com/profile/15823598771023508134noreply@blogger.com0tag:blogger.com,1999:blog-2520664226023191669.post-65852475164752701932010-12-03T07:12:00.000-08:002010-12-03T08:08:59.048-08:00good find: The Brain RulesWe found <a href="http://brainrules.net/">this book</a> about two weeks ago and it has been on my mind ever since. The brain is so powerful yet we can take it for granted. I want to discover the wonders and harness the gems. A great physio once told me "80% is attitude." Yes.we.can. It feels like part of the story behind the youtube "miracles" is fuelled by a positive attitude. There is a lot of negative hurled our way, in the medical world. Perhaps even despite good intentions. Obviously "hope" can only go so far but it is definitely part of the recipe.cb nixonhttp://www.blogger.com/profile/15823598771023508134noreply@blogger.com0tag:blogger.com,1999:blog-2520664226023191669.post-39904153320670832992010-11-24T10:41:00.000-08:002010-11-24T13:16:52.319-08:00The Backstory: A year in review<a href="http://www.ctv.ca/CTVNews/WFive/20101119/w5-the-liberation-year-ms-treatment-101119/">What a year it has been.</a> Ironically, I went for an ultrasound to see if my veins are narrowed or blocked, a day after the one year anniversary of this story. I feel conflicted in so many ways.I am awash with memories of my own medical tourism escapades a few years ago. It would be called a "complication" by some. I almost died. Also ironically, it involved a device for my veins and blood thinners. I am haunted by that experience.<br /><br />There are still more deaths <a href="http://online.wsj.com/article/BT-CO-20101117-710202.html">on the drug side of the game.</a>cb nixonhttp://www.blogger.com/profile/15823598771023508134noreply@blogger.com0