Tuesday, November 16, 2010

Follow up

There are very few easy answers in life, and the MS scene is seeing that story play out. On one hand, we see some patients recovering in remarkable ways. On the other hand, cautionary tales abound and some patients are seeing issues at home with follow up.

It seems that in very few cases we have the chance to see a well-thought out, considered case. A meatier sound-bite. It seems the patients that have done well aren't shy to have their 15 minutes. The patients who have had a less media digestible experience are less forthcoming. The neuros -- Can we trust them? The crystal ball is murky at best.

Wednesday, November 10, 2010

good find: CCSVI VIDEOS

There's no shortage of coverage, both big media and Average Joe - pro and against....links below. You decide.

CTV
Every day Folk
More Good News From Us
CTV ATLANTIC

Thursday, November 4, 2010

A River of Cold

Lately, I have been having this symptom that I call the river of cold. It feels like a trickle of ice cold water iflowing down my right arm, starting at my neck and going into my hand. I can't see a pattern in the whens of the rivers. It seems isolated to the right side. As scary as it can be, it is oddly poetic.

Thursday, October 28, 2010

Un.believable

As soon as any MS-er utters the phrase "big pharma", a common response is to raise an eyebrow and write you off as a conspiracy theory crazy who just might also believe in UFOS and that Elvis still lives. Meanwhile, it doesn't take much sleuthing to uncover news like this, and this. It really makes you wonder.

Thursday, October 21, 2010

Wednesday, October 20, 2010

good find: Be Your Own Best Advocate

Here's today's good find. Words of wisdom for everyone.

Friday, October 8, 2010

Just in case...

If you can't see the Stroke of Insight video, try this. If you want more, listen to this episode.