The landscape of MS is full of tales of ordinary folk rising to fight the good fight. This blog aims to capture that spirit.
Monday, December 5, 2011
Wednesday, November 9, 2011
Still broken
I was diagnosed with MS about 10 years ago. I was sent to a neurologist at a well-known clinic of experts. (A drug rep invited to learn from my diagnosis appointment, drug branded back pack sent) I was advised to go on the typical drugs. I followed the advice for two years. I got worse. I was told that if I didn't take a supposedly stronger drug, there was nothing they could do. I wanted to try a more natural approach. It seemed to work for a time. When I made this choice, I was on my own. No neuro, no clinic approval. Rogue. I tried a lot of things. Some things helped for awhile. Some choices led to darker outcomes.Recently, I decided to try Rehab. A combination of Physio, OT, etc.We will see if the skills they taught me over the 9 weeks or so do the trick. It is up to me to stay motivated.The lead doctor at the rehab hospital recommended a follow up with a neurologist. I thought another neurologist might have some insights to share. He set up a referral to a new neuro at the same clinic of experts.i recieved notice of a follow up with the same neurologist I saw 10 years ago. When I called to sort out the mix up, I was informed that that the request had been received but the clinic has a policy of not allowing patients to switch among the team.
Friday, October 14, 2011
Thursday, September 29, 2011
Unspoken
I woke up this morning with eyes wide open to life's uneven narratives. The story that we are told to want, and the way things actually are. I think it is partially election influence. At the end of the day, we need to follow our own path. Reality does not often match common assumptions.
Wednesday, September 21, 2011
Monday, May 30, 2011
Tuesday, May 10, 2011
good find: on being
A guide to being human. The guest speaker, Sylvia Boorstein was especially good.
A tree
Monday, March 21, 2011
Friday, March 11, 2011
Monday, January 31, 2011
Tuesday, January 18, 2011
Tuesday, January 11, 2011
good find: Purple Pants
This was sent to me by Ruby. Here's to celebrating difference.
Ironically, I chatted with a woman wearing fushia-purpley pants the day before I saw this video. Life is strange and beautiful. Dive in.
Ironically, I chatted with a woman wearing fushia-purpley pants the day before I saw this video. Life is strange and beautiful. Dive in.
Tuesday, January 4, 2011
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